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Social Determinants of Transgender Health

A dissertation by Scout.  Columbia School of Public Health, 2005.  

 
bulletWhy is it important?
bulletAbstract
bulletTable of Conten

Pieces of the community report are online!

bulletWhat are "social determinants of health"?
bulletTransgender 101
bulletTransgender health 101
bulletHow was the study conducted?
bulletSummary of findings -- coming soon

And now, the whole dissertation online. 

(Yes, I love Mozilla, but this is viewed best in Explorer)

bulletPreface Online -- includes acknowledgments, etc.
bulletIntroduction Chapter Online
bulletLiterature Review Chapter Online -- with list of all TG needs assessments.
bulletMethods Chapter Online -- dry stuff here, whew.  
bulletFindings Chapter Online -- Most of the participant stories are here.
bulletConclusion Chapter Online -- including recommendations for action + cites.
bulletBibliography Online -- hey, do you need a cite library in Endnotes?  email me.

Note:  Dissertation excerpts are copyrighted as part of the full document.  Please feel free to use the information, with appropriate citations.

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Why is it important?

There's been a bunch of research demonstrating that transgender people have a host of high risk behaviors and health problems.  Sex-work, addictions, high HIV rates, and mental health issues have all been strongly linked to these populations.  This project is important because it looked back into a variety of transgender people's lives to find out why some of these later health problems exist.  What did I find?  The shortest answer is the pervasive stigma that transgender people endure from their first awareness of being different creates a path directly to all these health problems.  The interviews basically showed how a lifetime of stress (especially violence-related stress for MTFs), social exclusion, and lack of social support mix together to leave transgender people very unstable and vulnerable to health problems.  These same interviews also told of the incredible stories of daily willful survival transgender people achieve.  Next, you can read roughly the same thing in academic language...

 

Dissertation Abstract

Social Determinants of Transgender Health

Transgender people are “compromised survivors” who both experience and challenge gender-based oppression. The term “transgender” describes a diverse population of people whose identity does not conform to normative gender expectations.  Transgender people experience adverse health outcomes unlikely to be biological in nature, and are best understood in terms of social determinants of health.   The social determinants framework contextualizes transgender health outcomes, situating them within a larger social context of discriminatory gender oppression.  Life history interviews with 13 transgender people, focus groups with 16 transgender people and 9 in-depth interviews with “key informants” suggest that stress, (lack of) social support, and social exclusion are the primary social determinants of transgender health.  Violence-related stress is most pronounced.  Violence against transgender people is associated with level of gender variance; transgender people who regularly “pass” as either gender reported lower frequency of violence.  Almost all participants reported frequent fear of violence.  Hair-trigger violence, or sudden unprovoked aggression, was an important phenomenon among male-to-female (MTF) vector transgender people. Violence is often experienced within sexual relationships or within the context of sex work.  Internal gender oppression creates another layer of stress, often manifesting itself through addictions.  For some participants, addiction problems were resolved on “transition” from birth to true gender.  Social support is weak or absent for many transgender people.  Participants experience alienation from families-of-origin, friend networks, and potential romantic partners.  Social exclusion of transgender people further compromises their health status.  Exclusion from healthcare, education, housing, and employment means that transgender people often lack access to basic resources.  Some female-to-male (FTM) participants experience an improvement in social standing if they “pass” as male, but this is tempered with concomitant exposure to gender bias.  The demographic factors of SES, race, gender vector (MTF or FTM), and ability to pass as gender normative have an interactive effect with social determinants. A diverse participant pool allows for the observation of gender-related trends across race and class. The approach used to recruit a diverse group of participants from a hard-to-reach population was successful and can serve to inform work with other populations.

 

Table of Contents

TABLE OF CONTENTS                i

LIST OF CHARTS, GRAPHS, AND ILLUSTRATIONS    iv

DEDICATION  vii

PREFACE: A NOTE ON LANGUAGE    viii

A NOTE ON PRIVILEGE AND OWNERSHIP  viii

CHAPTER ONE: INTRODUCTION        1

        An Introduction to “Transgender”      3

        Statement of the Problem       8

        Importance of the Study          11

        Purpose of the Study 12

Research Questions           12

Delimitations and Limitations      13

Over view of the Dissertation       16

CHAPTER TWO: REVIEW OF THE LITERATURE            19

Outline of Literature Review         19

Social Determinants of Health     20

The social gradient      24

Stress   25

Early life             26

Social exclusion            27

Work    28

Unemployment             28

Social support                29

Addiction          29

Food    30

Transport          30

Transgender Health            31

The Complicated Relationship with the Medical Community           33

Health Outcomes         36

Sexually Transmitted Diseases            38

Silicone Use     40

Mental Health Issues 42

Additional Health Outcomes                44

Social Determinant Information          46

Social gradient               47

Stress   47

Early life             50

Social exclusion            52

Work and Unemployment      55

Social support                58

Addiction          60

Food & Transport                         61

CHAPTER THREE: RESEARCH METHODS        63

Introduction            63

The Research Plan: A Triangulation of Qualitative Methods      63

Theoretical Foundation    66

Conceptual and empirical challenges in studying the transgender population            69

The researcher’s role          72

Data Sources:  A Study in Finding Hard to Reach Populations  78

Low-Incidence and Low Profile           78

Findings Related to a Secondary Research Question             80

The Sampling Plan      80

The Outreach Plan       83

Data Collection     97

Data Transcription, Cleaning, and Verification   101

Data Analysis         102

Ethical Considerations      104

Plan for Study Results       105

CHAPTER 4: FINDINGS              107

Introduction: The effect of discrimination             107

The Major Finding: Compromised Survival          109

Research Question:  How do social determinants affect transgender health?                110

Finding 1:  Transgender health is defined by extremely high levels of stress 

Introduction to stress                111

The stress of pervasive violence         112

Place and Time 1: Amanda Milan on the mind    112

The Level of Normalization of Violence  113

Trauma and early development: “A heart of stone”         119

Violence and Social Role  124

Violence in perspective: exploring its role across narratives      129

The Example of Three White Women: visibility equals risk         130

FTMs: less exposure to violence but still not safe             133

No Warning, Never Safe: the phenomena of “hair-trigger violence”     136

One Survival Strategy: hiding       138

Violence in conclusion      140

Place and Time 2: Paola Matos on the mind         141

The stress of internalized gender oppression             141

Introduction: seeing the “the pattern of craziness”          141

Traditional gender oppression and transphobia: the story of Anna      143

Non-traditional gender paradigms still oppress: the story of Carrington           146

Internalizing gender oppression in perspective: its role across narratives        149

The stress of internalized gender oppression: in conclusion     151

Finding 2: Transgender health is defined by extremely high levels of social exclusion.            153

Extreme Social Exclusion: the story of Darlene’s transition 153

Social exclusion from education         157

Education as Social Support: The story of one unusual college in the south    159

Education as Opportunity               161

Social exclusion from employment   166

Social Exclusion from Housing            174

Social Exclusion from Health Care     175

Interaction Between Social Exclusion and Transitioning     180

Social Exclusion in Conclusion            183

Finding 3: Transgender health is constrained by lack of social support.             185

Introduction    185

Social Support and Family of Origin 185

Widespread stories of early life rejection and alienation             185

Occasional stories of support       188

Later life support from family of origin   190

Social Support & Personal Relationships       191

Pre-transition friendships               191

The role of initial community contact      191

The key role of mentors    192

Post-transition friendships            194

Relationships         197

Social Support in Conclusion                201

CHAPTER FIVE: SUMMARY AND CONCLUSIONS      203

Review and Discussion of Primary Research Findings  203

Social determinants adversely affect transgender health through the major paths of stress, social exclusion, and inadequate social support    203

Transgender health is characterized by compromised survival       208

Review and Discussion of Secondary Research Findings            211

Social determinants is a valuable framework for studying highly stigmatized populations          211

An outreach plan built on reciprocity of value and existing social networks is successful in gaining access to this hidden population       212

Recommendations for future research    212

Why so interested, why so angry?  The need for research on johns, violent offenders, and blatant discriminators                212

Additional research on social determinants         

Recommendations for action  

Recommendations for Action. 212

Prioritize educational system interventions. 213

Prioritize early life safety net interventions. 214

Pursue multi-level policy changes. 215

Prioritize mental health and trauma recovery services across the lifespan. 218

Prioritize life-stabilizing interventions and services. 220

Prioritize interventions tuned to population-specific challenges. 220

In Conclusion         221

BIBLIOGRAPHY             223

APPENDIX: INSTITUTIONAL REVIEW BOARD PROPOSAL   237

 

More dissertation info coming soon!!